Cystic Fibrosis
About cystic fibrosis
Cystic fibrosis is a fatal, genetic disorder. This disorder manifest itself by abnormal production of mucus, mostly affecting the lungs and digestive tract. On average, people with CF only live into their late teens. Right now there is no cure. However, researchers all over the world are doing their best toward coming up with one.
Links to more info
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CF Care
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CF-Web - information for people with cystic fibrosis and their friends and family
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CysiticFibrosis.com - information for families and patients including forums and a on-line newsletter.
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Cystic Fibrosis
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Family Guide to Cystic Fibrosis Genetic Testing - information and resources concerning education, testing and counseling.
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How To Handle Living With Cystic Fibrosis - information for teenagers and young adults with cystic fibrosis.
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Living with Cystic Fibrosis - contains info on how to deal with hospitalization, medication, school and social life and more.
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My Life As An Adult with CF
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Cystic Fibrosis 101 - includes links to associations, genetic testing, burkholderia cepacia, and health insurance
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Cystic Fibrosis index of On-Line Resources
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Cystic Fibrosis Links
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Canadian Cystic Fibrosis Foundation
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Cystic Fibrosis Cybercampus - funds research and organizes support groups.
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Cystic Fibrosis Foundation
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Cystic Fibrosis Research, Inc.
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Cystic Fibrosis Spanish Federation - Federacion Española contra la Fibrosis Quistica. Member of the International Cystic Fibrosis (Mucoviscidosis) Association. In English, Spanish, and German.
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Cystic Fibrosis Trust, The - information about Cistic Fibrosis and the Trust.
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International Association of Cystic Fibrosis Adults (IACFA) - IACFA is a non profit organization, tries to improve the quality of life of abult persons with cystic fibrosis by addressing their problems and needs.
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National Cystic Fibrosis Awareness Committee - working to establish a national cystic fibrosis awareness week.
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Usenet - sci.med.diseases.cysticfibrosis