Muscular Dystrophy

Muscular dystrophy is many disorders

Muscular dystrophy is a term used to describe several genetic (inherited) disorders that result in progressive muscular weakness. Only the most common is discussed below. Please see links for information about other types.

About Duchenne muscular dystrophy

Duchenne muscular dystrophy is the most common and most serious type of muscular dystrophy. Muscle tissue is gradually replaced by fat cells and connective tissue. DMD suffers lose the ability to walk, usually by age 12. Use of arms and legs may also be severely affected. Muscle deterioration also results in respiratory complications. Sufferes of DMD usually die by early adulthood.

Links

Ask Noah About: Muscular Dystrophy
Born To Run - parent to parent site against Duchenne MD; info about research, support, general cares, physiotherapy; contacts between parents worldwide; (in Italian).
Chat With Matt - for kids that want to connect regarding Duchenne Muscular Dystropy, also helpful treatment information.
DMD Info Site - Duchenne Muscular Dystrophy information site by a parent of a boy with DMD.
DMD Research Center - information on Duchenne and Becker MD.
Duchenne and Becker MD - information: family & friends, biomedical researchers, and care givers to help children/adults with Duchenne and Baecker MD.
Duchenne Muscular Dystrophy
Giovanni Naso's Muscular Dystrophy Page
Haynes Family - parents of Matt who has Duchenne Muscular Dystrophy (DMD). Contains information on DMD and links to related sites.
Jesse's Journey - A Father's Tribute
Jesse's Journey for Gene Research
Kennedy's Disease/Spinal Bulbar Muscular Atrophy
Musclenet - provides information on clinical, diagnostic criteria and epidemiology of inherited neuromuscular disorders as well as on current research.
Usenet - alt.support.musc-dystrophy

Organizations

Muscular Dystrophy Association
Muscular Dystrophy Group - information about neuromuscular conditions, facts, current research, equipment, education, and more.
Parent to Parent Support for Muscular Dystrophy - support group by and for parents of children with MD. Connect with other families and find useful information on coping with MD .
Unione Italiana Lotta alla Distrofia Muscolare - (in Italian, English, and German).